I Want Perfection

I know I tend to repeat this subject but it is something of importance for me my whole life. I have battled self esteem problems and writing about it helps me move forward.As you guys already know, I have experienced bullying and fat shaming as a child. When I became a "tween" I made a promise to myself that I would not be that fat tomboy girl anymore. I would be the girl that people admired. I wanted to be the perfect skinny, beautiful girl with nice things. I wanted to be liked by everyone and popular in school. I wanted to be so perfect, that nobody could say or find anything wrong about me. So I went on a diet with my sister and I got down to a low weight. I felt perfect for a while but deep down I felt so much self hate and doubt. I felt like the most insecure girl. When I hungout with friends I would think about how skinny they were. They had better arms or a flatter stomach than me. I compared myself in the pictures with other girls and picked out a body part that I needed to work on. Why was this girl so perfect and likable and I am not? I assumed she was prettier so that was why.

I don't know how many diets I've tried throughout the years. My first time was when my aunts called me fat and told me I shouldn't eat the cake at Golden Corral. I went to the restroom and cried and threw up the food I ate. When green tea pills were trending to lose weight, I started taking the pills. I remember trying to take metabolife and I think they had lawsuits and stopped producing those lol. I took a subway footlong and cut it into four pieces and ate a piece every few hours and nothing else. I worked out 4 hours a day at the gym then came home and did workout videos. I've tried every herbal remedy and diet teas out there to lose weight. I remember at my thinnest, I still felt huge even though people said my weight was too low. My weight would yo yo and I just couldn't stop fixating on my flaws. I would say I was obsessed with my looks. I was vain but I couldn't stop myself I was addicted to finding my flaws and trying to fix it. My hair was too wavy, frizzy, I had hairy arms, my belly was too big, I had pimples, I am too tall (yes LOL I am only 5'4) etc.. I had trouble embracing my looks and I had no idea what inner beauty was. I had no sense of self or morals. I just wanted to look perfect on the outside. I didn't feel like I was ever smart enough but I knew I looked pretty decent. What needed improvement was my mentality and self worth.

Pre Cushing's at my thinnest. I felt like a fat girl trapped in a small body.

Being sick with Cushing's pushed me to the edge. I had so much self worth in my looks that I was nothing without it. I hated myself for how I looked. I couldn't look at myself in the mirror without bursting into tears. I blamed myself for getting sick because I was so vain all these years and I deserved all that was happening to me. People talked about my looks and I thought this was the worst thing I have been afraid of my whole life. When I was diagnosed with Cushing's I accepted that this was what it is. I began to stop fighting myself and finding inner acceptance. My security blanket was gone and I was forced to face my fear. Sure some days were easier than others. But I took a real hard look into myself to find something good about me. I realized one of my biggest fears happened. I was fat, hairy and pimply. And got called out for it. But I was still alive. I accepted it all. I still had people around me at my worst. I had support. Still I was ashamed at times for what I looked like. But now I see that what I was doing before was all wrong. I am so thankful for this to have happened to me for me to finally realize my self worth. And I am thank ful that I have never felt more perfect now than ever. As the layers of shame, fat, acne started to melt away, I am left with just me. I still have my days where I feel not smart enough or prettiest but I am okay with that. I would rather radiate inner beauty any day than be the prettiest girl in the room who is vapid, vain, and conceited. Because looks will fade but not my inner true self. Much love you guys! Let's all have cake and enjoy ourselves =] Here's some progress pics. My next post will be about my eating habit and lifestyle during recovery.

RECOVERY 11 Months

My Picture Timeline on Youtube

Hello! I decided it's time to put up some pictures of my progress.. I want to talk more about Cushing's, my experience, and support through videos but I'm a bit still shy so I decided to make a slideshow instead... I'm not a pro and some of the captions don't show up idk how to fix it loll I'm a newb but here it is:

Please share this video!

Hello Bones!

I know that the word bone sounds kinda morbid but I have to share the delight I have found these past few weeks of improvement. The other day I looked in the mirror and saw my collar bones again! It's crazy that during Cushing's I had no kind of collar bone, spine, cheek bones etc... But now all of those bones are visible again. I am starting to have a normal shape back. Yes, it is still very slow but I can no longer deny that I am improving. My tummy is getting so flat and my butt is getting rounder and I have not diet or exercised since the surgery! I have lost 5 lbs somehow. Trust me when I say I have been snacking on junk lately. Carbs, sweets, fried foods, the whole shebang. My appetite has suppressed a lot but I can eat more and not feel that weird panicky feeling. The other day my family members commented on how different I am starting to look since the surgery. My eyes look more awake and my lips are getting plumper lol and my chin is more visible. Idk how to explain all of these changes. Maybe it's no more water retention? Hormones balancing out? It's funny how when I was sick I dieted and exercised like crazy and nothing really happened. Last year I did insanity workouts and ate lettuce for 3 months I lost around 5 lbs but I gained it all back within a few weeks it was so strange, then after that I tried to continue working out and eating healthy but the inches and pounds kept adding up. Nothing I could really do about it. I remember I looked in the mirror and did not recognize myself but now I am starting to see a glimpse of myself again. I later just gave into the Cushing's instead of fighting it because I was so exhausted about all the worries and needed a break.

I am still super tired but that is fine with me. I'll just continue to rest until I physically and mentally feel better. The other day two of my incisions got infected and was leaking pus it was gross and painful but I cleaned it and noticed the stitch threads were poking out so I pulled them out.. It hurt like a b***** but my surgeon directed that I keep an eye out if it worsens. My skin is improving more also but that definitely takes time since I am slow healing. Still get weird bruises and scratches out of no where and tried to start exercising but bones still hurt. I still get the fatigue and moments of feeling crappy but it is not an all day thing now. Still have not gotten aunt flo. The docs prescribed me some bcp but I tried taking them and felt like dying so I stopped. I guess I'll continue to have to wait it out some more. I should do a whole body pic before & after but I don't have anyone to take the shot so I'll just post up pics of my collar bones!


w/Cushing's syndrome/ no visible bones

Collar bones yay!

The Journey Begins

BACK STORY: My health is my pride. Growing up, I was the overweight chubby little kid. I was always active but I liked my chips, soda, and mcdonalds. That was until when I turned 11 that I decided I had enough of being chubby wubby and went to lose 20 lbs from diet and exercise. Let me say that quality of life gets much better once you lose alot of weight. I was always active skating, biking, and running around the neighborhood with family and friends. After that I continued to remain fairly thin and healthy. I would do sports like track, rotc, and cheerleading to stay active in school. I did have a certain time where I had a partying and drinking phase but who didn't and now it's over and done with. If there was a new health craze, I would be the first to try it. Friends and I would sign up for bootcamp, kickboxing, and pole dancing classes etc... I've even graduated from the 60 day Insanity workout program. I've tried detoxes, cleanses, eat veggies, fruits and drink lots of water in the name of health. I am always energized and never got sick. My health is my pride, I must be healthy right? Wrong...

SUBTLE SYMPTOMS: Last summer I was working and going to school. I felt stressed but nothing major but i had a weird feeling of my body in constant excitement. I couldn't sleep much but had a lot of energy yet felt fatigued. Then my period stopped but my cycle was always irregular since I was 17 so I thought nothing of it. Suddenly my acne got terrible and I started to gain a lot of weight in my cheeks but I just assumed it was stress and it will pass. My face especially my cheeks started to get really round but I've always had chipmunk cheeks so I didn't think much of it. Then I started to feel anxious all the time and it progressed to panic attacks at random times and places and when I say "panic attacks" I meant full blown ones where I thought I was going to die because I could not breathe and felt like I had heavy bricks on my chest. After those episodes, the feeling of the "heavy bricks" on my chest still remains til today. I started to become moody and was acting aggressive towards family and friends. I was becoming a person I did not recognize and wondered why I was feeling this way. Friends and family started to ask if I was pregnant and why I was breaking out.  One of my boyfriend's mean teenage sister said straight out in front of the family "you're fat now" and she started laughing at me. They looked at me like I was purposely letting myself go and doing this to myself. I was a confused mess. I was going through conflicts with some relationships and I assumed it was just more added stress. I felt like a terrible person so I decided to start going to meditation center for two months but I still had the "heavy brick" feeling on my chest and all the other symptoms. I was becoming depressed. My boyfriend tried to convince me to go see a doctor but I was too stubborn to agree. Note: my worst fear is to lose my mind or become mentally ill (no offense to anyone, I do think we all are to a certain degree) so I ignored all the signs and figured I will somehow fix this myself because my health is my pride and I have total control over my mental and physical health. That was until an awful attempt at suicide one night because I felt like I wanted all the strange feelings to end. It was a wake up call that I became what I feared the most and though I thought I had everything in control,yet my mind and body was slipping away. My boyfriend once again told me it's urgent to seek some help. Feeling defeated, I agreed.

THE DIAGNOSIS PROCESS: In January we made an appointment to see an endocrinologist. The Dr ordered me to take many blood tests and labs. Let me tell you that waiting for lab results is probably the worst part because it takes one to two wks for results and you're just thinking of the worst case scenario of "what ifs". the tests came back and the results were all normal except for one thing, I had abnormally high cortisol levels in my blood. The Dr thought it was a fluke so he ordered more blood tests. Great, more waiting... The next test revealed the same results of abnormally high levels. He then asked if I could take a ultrasound of my ovaries. then the results came back that I had Polycystic Ovarian Syndrome due to no menstrual cycle. okay good I thought, he'll just put me on some birth control and I will be fixed. Wrong.. He then ordered me to take a saliva and 24 hr urinary test. The results came back that my adrenals were pumping out abnormally high levels of cortisol and adrenaline. He then got concerned and had me go get a CAT scan. The CT scan was terribly invasive. I felt like a microwaved chicken for 15 minutes lol. Anyways I was getting worried as to why I would need a cat scan. I had to wait a week and my symptoms were getting worse coupled with joint and muscle pains now. Finally the day of meeting my doc my boyfriend and I were anxious to hear the results. I didn't sleep all night oddly fearing that we cannot find anything wrong and that I will forever keep taking more health tests and it is indeed a mental illness. The Dr comes in and with sympathetic eyes and asked me how I was doing. I knew then that the news would not be good. He then said "Van, this is alot to take in but you have an active tumor on your adrenal gland that is causing all the symptoms you are feeling. It is imperative to have it removed or it can potentially be fatal." he explained that the tumor is secreting hormones in my body that is causing me to have Cushing's syndrome. How could this be happening? I hear my boyfriend and my doctor discussing outcomes, costs, surgeons, health risks. But I had no idea what to think or where to start. I felt like passing out. How do I tell my family? How will I pay for this? What will happen to me after recovery? It was the longest drive home. My boyfriend decided to stop by berripop to cheer me up. We sat and ate yogurt. My boyfriend then looked at me and said "this isn't what we expected or prepared for, but hey hun guess what? I told you you're not crazy." That made me realize that my worst fear did not happen and I do have control over this situation. Also I am blessed that the tumor is not cancer and once it is removed, the Cushing's syndrome will go away and I am expected for a full recovery though it may take months to years depending on how long I've had it. My doctor told me I've been living with it for years now but the symptoms are now fully showing up. I suspect it started from when my periods became irregular. Looking back, no wonder I've always felt so anxious, stressed out, and aggressive for no reason. I never had regular sleep patterns and always gained weight in my cheeks which is typical "moon face" symptom that all Cushie's develop. I've always been a little furry lol and started to develop acne when I was around 19 but never had it in highschool like my mom and sister. The older I got the more I felt less like myself mentally and It was to the point I felt like my mind and body was falling apart. I always just blamed it on external things in life but now I know. It's hard to describe and understand what I was and am going through unless you're a Cushie yourself. but it's like you have no control over your mind and body everyday and the symptoms get worse and you don't know how to fix it. But It all makes sense now. From reading other's recovery story, the diagnosis is just the beginning of the battle but at least i know what I am dealing with and I am ready to take this journey to claim my health back.

my delicious cat scan smoothie lol

I had no idea an IV was needed for the scan