This channel will be dedicated on videos about my experience with Cushing's Syndrome, My health journey and what i've learned. I've been getting a variety of questions concerning Cushing's, health, diet, and skincare routine so I would like to share it with you. I hope that talking about my experience will help others who are struggling know that there is a life after suffering from an illness and you are not alone. I was never confident enough to put out videos but if it can help someone why not!! Please feel free to comment below about anything :)
Showing posts with label beauty. Show all posts
Showing posts with label beauty. Show all posts
Saturday, June 24, 2017
New Video Up!
This channel will be dedicated on videos about my experience with Cushing's Syndrome, My health journey and what i've learned. I've been getting a variety of questions concerning Cushing's, health, diet, and skincare routine so I would like to share it with you. I hope that talking about my experience will help others who are struggling know that there is a life after suffering from an illness and you are not alone. I was never confident enough to put out videos but if it can help someone why not!! Please feel free to comment below about anything :)
Saturday, January 31, 2015
Update Fully Tapered Off Steroids (PICS) and MORE!
Hi guys! I apologize for not updating in so long but don't worry I am still very active in responding to my emails, youtube(onedelicateheart), and instagram(1delicateheart). Ever since coming back from the New Jersey trip I have gotten so many emails and messages from Cushies and people who are in the diagnosing process. So feel free to contact me from those various social medias. Best way to get a quick response is to email me at yumnguyen07@yahoo.com
If you guys haven't checked out Rachel and Rae's website cushingstories.com then you better go and check it out now. I am so proud of these ladies for doing so a huge thing for our cushie community. There are stories, contacts, and videos for you to learn more about. Please share <3
So I have big news! I have fully weaned of steroids for 3 weeks! My doctor told me that my left adrenal gland has woken up. It is functioning at a low level so my adrenal gland is not producing like the normal average person but my body has adapted to the low levels so I decided to quickly taper off the rest of the hydrocortisone (Cortef) because let's face it, it is a pain in the ass to take and still felt bloated from small amounts! Well, how am I feeling? I feel almost perfect. Like I am 97% there. There are times I notice the change in energy and feel great then sometimes I feel lethargic and faint due to the fact that I have used up the little amount of cortisol reserve that I produce but nothing that I have not already been through and it is bearable. I still get very faint often but I think I need to start eating a diet that supports the hypoglycemia issue. And of course how do I look? Well here are some photos for you guys to see =]
These pictures are all post op and recovery. and no I did not get facial surgery during recovery, it's just really good makeup tricks I started learning that I want to share to you all soon! But now Here is the breakdown of my recovery. This is not the most organized list sorry! lol
6 Month Post OP: moon face was shrinking, acne growth stalled, skin got a bit drier, still bloated, face still felt heavy (hard to smile or open eyes wide), droopy skin, reddish orange skin, no hair growth, depression, anxiety, nausea, hello collarbones! dry eyes, adrenal insuffiency was at it's worse due to tapering. high bp but pre diabetes was gone. Sleeping all the time. Lazy, no motivation. panic attacks. Crying all the damn time.
10 Month: Face continued to shrink, features feminizing (eyes and lips look more pretty??), smiling is easier but still felt like cheeks were heavy, acne fully stopped, skin healing, hair growth (baby hair halo) not so healthy looking though crinkly hair texture, period was back (still irregular), buffalo hump shrinking, itchy dry skin to the point I can't sleep, body adapting to adrenal insuffiency, acne scars, less depressed, up and down emotions and mood, nausea, faint, period still irregular. Insomnia. undereye bags circles. Panic feelings, no attacks.
12 Month: I have to say I felt much happier after a year since the surgery, My face is almost back to normal, features are slowly defining, smiling is easy, hair is starting to regrow fuller but texture is still crinkly, no more acne problems, super duper dry skin, less crying, less stressed, I notice myself being funny and enjoying life like never before, began socializing again, face dimple is starting to show, jawline, cheekbones and nose looking slimmer. less nausea, Less paranoid. Insomnia. Doing normal activities. Shopping addiction due to weight loss and increased confidence LOL
14 Month: period came back regularly (feeling prettier after every menstrual cycle), skin is glowing, reddish orange skin fading, acne scars healing, less hair fall, wondering if this was as good as it gets??, face features more defined. fainting, low bp, dizzy, Mood is pretty stable but I still will get cranky when I being weaning off more steroids, more confident, no more sadness and resentment in my heart.. I literally woke up one day feeling like all the bad stuff and people in the past did not affect me anymore. Truly a miracle. Is this it? Will it get better? Sleep is up and down.
16 Months: face is back to normal, dimple is fully visible, jawline is chiseled, sleeping more, period is irregular again (due to low amount of steroids?), hair is healthier and shinier better texture, acne scars are less visible, night sweats, fainting, dizzy, extreme low bp (good thing? idk), satisfied with how i look but still worried if I still would have the highs and lows of moods and dizziness.
18 Month (fully off steroids): Face got even smaller less bloated (yeah I didn't know that was possible), I can now even smile with my teeth effortlessly, skin fully healed, scars are not as visible, I feel confident enough to go makeup free while running errands, people complimenting me, strangers think I am younger than my age, my mom says I look like I did back as a senior in Highschool! Thanks mom. Still faint and dizzy, no more obsessive thoughts, no more paranoia, no more guilt, anxiety, or shame, no more negative feelings. Mind is at peace, skin still dry, period still irregular but still coming, facial features look lifted, eyes are brighter, eyes are less dry, feeling motivated, not afraid of speaking my mind. No more panic attacks! Still food sensitive. No more waking up at 9am to take Cortef yay!
My body Recovered:
Less joint pains, muscles are starting to look more defined with little exercise around month 9 post op, no dieting, appetite is normal. No more feelings of being ravenous with food, body is getting a more feminine curvier shape, fat is relocating to where it should be instead of on my stomach, buffalo hump gone. I can feel my spine, collar bones, less body and facial hair, more hair on head lol... no more orange hands, still food sensitive to salt, sugar, and MSG. Can drink coffee without panic attacks. Can lightly workout and lift light weights with less muscle pain. Still cannot run or do any hardcore exercise training (not that I ever want to again). more flexible. no more bloating in weird places. More active. Feet shrank 1 size down (size 7 to 6-5.5), no more rapid hearbeats. Feels like I can breathe again. The heavy brick feeling on my chest is gone yay! Digestion is greatly improved.
That is all I can think of right now. I am thrilled that my future is filled with more optimism. I am glad that majority of the stuff is reversible. I am still stuck with a few minor health nuisances that Cushing's affected. I really don't think it is going to ever get me down because everything that I prayed for I have been given by God and the Universe. This whole experience really shaped me to become who I am now. I am stronger and humbled than I was ever before getting sick. I am glad that I got to meet so many people and understand the struggle of getting everything taken away from me. I learned the lesson of compassion, patience, and gratitude. I will continue to advocate for Cushing's and rare diseases. So I will always come back to blog and update my life. I also want to be more active on my youtube channel and posts some videos of me talking about various Cushie subjects and giving advice to Cushie patients and also post my beauty tips and tricks and also my health regimen. I just need to get over my fear of talking to a video camera lol. Thank you guys for reading this post and supporting me through this journey. I will never forget. Much love!
If you guys haven't checked out Rachel and Rae's website cushingstories.com then you better go and check it out now. I am so proud of these ladies for doing so a huge thing for our cushie community. There are stories, contacts, and videos for you to learn more about. Please share <3
So I have big news! I have fully weaned of steroids for 3 weeks! My doctor told me that my left adrenal gland has woken up. It is functioning at a low level so my adrenal gland is not producing like the normal average person but my body has adapted to the low levels so I decided to quickly taper off the rest of the hydrocortisone (Cortef) because let's face it, it is a pain in the ass to take and still felt bloated from small amounts! Well, how am I feeling? I feel almost perfect. Like I am 97% there. There are times I notice the change in energy and feel great then sometimes I feel lethargic and faint due to the fact that I have used up the little amount of cortisol reserve that I produce but nothing that I have not already been through and it is bearable. I still get very faint often but I think I need to start eating a diet that supports the hypoglycemia issue. And of course how do I look? Well here are some photos for you guys to see =]
6 Month Post OP: moon face was shrinking, acne growth stalled, skin got a bit drier, still bloated, face still felt heavy (hard to smile or open eyes wide), droopy skin, reddish orange skin, no hair growth, depression, anxiety, nausea, hello collarbones! dry eyes, adrenal insuffiency was at it's worse due to tapering. high bp but pre diabetes was gone. Sleeping all the time. Lazy, no motivation. panic attacks. Crying all the damn time.
10 Month: Face continued to shrink, features feminizing (eyes and lips look more pretty??), smiling is easier but still felt like cheeks were heavy, acne fully stopped, skin healing, hair growth (baby hair halo) not so healthy looking though crinkly hair texture, period was back (still irregular), buffalo hump shrinking, itchy dry skin to the point I can't sleep, body adapting to adrenal insuffiency, acne scars, less depressed, up and down emotions and mood, nausea, faint, period still irregular. Insomnia. undereye bags circles. Panic feelings, no attacks.
12 Month: I have to say I felt much happier after a year since the surgery, My face is almost back to normal, features are slowly defining, smiling is easy, hair is starting to regrow fuller but texture is still crinkly, no more acne problems, super duper dry skin, less crying, less stressed, I notice myself being funny and enjoying life like never before, began socializing again, face dimple is starting to show, jawline, cheekbones and nose looking slimmer. less nausea, Less paranoid. Insomnia. Doing normal activities. Shopping addiction due to weight loss and increased confidence LOL
14 Month: period came back regularly (feeling prettier after every menstrual cycle), skin is glowing, reddish orange skin fading, acne scars healing, less hair fall, wondering if this was as good as it gets??, face features more defined. fainting, low bp, dizzy, Mood is pretty stable but I still will get cranky when I being weaning off more steroids, more confident, no more sadness and resentment in my heart.. I literally woke up one day feeling like all the bad stuff and people in the past did not affect me anymore. Truly a miracle. Is this it? Will it get better? Sleep is up and down.
16 Months: face is back to normal, dimple is fully visible, jawline is chiseled, sleeping more, period is irregular again (due to low amount of steroids?), hair is healthier and shinier better texture, acne scars are less visible, night sweats, fainting, dizzy, extreme low bp (good thing? idk), satisfied with how i look but still worried if I still would have the highs and lows of moods and dizziness.
18 Month (fully off steroids): Face got even smaller less bloated (yeah I didn't know that was possible), I can now even smile with my teeth effortlessly, skin fully healed, scars are not as visible, I feel confident enough to go makeup free while running errands, people complimenting me, strangers think I am younger than my age, my mom says I look like I did back as a senior in Highschool! Thanks mom. Still faint and dizzy, no more obsessive thoughts, no more paranoia, no more guilt, anxiety, or shame, no more negative feelings. Mind is at peace, skin still dry, period still irregular but still coming, facial features look lifted, eyes are brighter, eyes are less dry, feeling motivated, not afraid of speaking my mind. No more panic attacks! Still food sensitive. No more waking up at 9am to take Cortef yay!
Less joint pains, muscles are starting to look more defined with little exercise around month 9 post op, no dieting, appetite is normal. No more feelings of being ravenous with food, body is getting a more feminine curvier shape, fat is relocating to where it should be instead of on my stomach, buffalo hump gone. I can feel my spine, collar bones, less body and facial hair, more hair on head lol... no more orange hands, still food sensitive to salt, sugar, and MSG. Can drink coffee without panic attacks. Can lightly workout and lift light weights with less muscle pain. Still cannot run or do any hardcore exercise training (not that I ever want to again). more flexible. no more bloating in weird places. More active. Feet shrank 1 size down (size 7 to 6-5.5), no more rapid hearbeats. Feels like I can breathe again. The heavy brick feeling on my chest is gone yay! Digestion is greatly improved.
That is all I can think of right now. I am thrilled that my future is filled with more optimism. I am glad that majority of the stuff is reversible. I am still stuck with a few minor health nuisances that Cushing's affected. I really don't think it is going to ever get me down because everything that I prayed for I have been given by God and the Universe. This whole experience really shaped me to become who I am now. I am stronger and humbled than I was ever before getting sick. I am glad that I got to meet so many people and understand the struggle of getting everything taken away from me. I learned the lesson of compassion, patience, and gratitude. I will continue to advocate for Cushing's and rare diseases. So I will always come back to blog and update my life. I also want to be more active on my youtube channel and posts some videos of me talking about various Cushie subjects and giving advice to Cushie patients and also post my beauty tips and tricks and also my health regimen. I just need to get over my fear of talking to a video camera lol. Thank you guys for reading this post and supporting me through this journey. I will never forget. Much love!
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Before and After |
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| add me on Instagram! |
Tuesday, August 26, 2014
My Hair Has Been Electrocuted
I've been trying to grow my hair out since my last haircut a few months ago. Lately I have been distracted examining my hair. For the past few weeks I have been noticing another change in my hair texture. When I had CD my hair was falling out, I had some bald patches in the front and overall was thinning. It was oily so It was still soft and shiny though it was very thin. I noticed that after surgery, My hair started to regrow and fill in the bald patches however the new hair growing in is very course, dry and rough in texture. It is still fairly thin as my ponytail is a measly half fistful and now it looks dead and dull. I traded the balding for courser crinkly hair. I am not sure how I feel about this, other than I am completely distracted with how it feels. Almost like I've been electrocuted lol
A bit worried, I talked to my friend and she confirmed that the hair issues are from steroids and possibly AI. And her hair improved when fully tapering off. I hope in time my hair will start growing in better and healthier. Not only are we plagued with waiting for our health to get back but we have to be patient for our appearance to get normal. But Don't worry about it Cushies! Worst case scenario is that we could shave it all off lol just kidding >.<
As my lesson in health and recovery continues, I realize that the best way to get through these changes is to let go of our attachments to things in our life such as the past, the way we use to look, anger towards things we cannot change, material items and the way other people view us. Yeah that's a hard pill to swallow being a 25 year old girl/woman who is vain as the mortal version of a Kardashian. But I must remember that things were worse and now getting better. I almost forget that while comparing old photos pre CD, I look better now because I have some kind of inner self esteem I discovered during this whole process. It helps me to feel comfortable in my own skin and accept myself regardless of how I look. It kind of just radiates and people seem to approach and say hi to me. Unlike before people seemed to stare at me for the way I was dressed or the ridiculous amount of eyeshadow I wore lol OR maybe, it's because I seem happier :D
Friday, April 25, 2014
Losing Your "Spark"
I talked to a Cushie friend of mine a while back and we talked about how great it feels to be looking more like ourselves these days. Shopping has been so enjoyable, to the point of becoming a shopping addiction. I was always a shopaholic before but now I feel like I want to buy everything I try on so this is not good for my piggybank but who cares I feel great about it! Another thing we talked about was though we look so much better than during our Cushings days, we still feel like our face has changed... like we lost our "spark". You know the feeling of how fresh faced and bright eyed you looked in your Highschool or College pictures but now you look in the mirror and see tired looking version of your old self? I mean, we both are very young but after Cushing's, and Adrenal insuffiency, we don't have that glow anymore.
During the early stages of my sickness I already noticed that my eyes looked different. It seem to have a blank stare instead of an emotion. In most pictures my eyes would look dead even when I am smiling. Then a few years into Cushing's, my eyes seemed like they were getting smaller and my eyelids got really heavy like I couldn't open my eyes wide. My nose looked like it was growing. I felt like my whole face got heavy that I just looked like I was frowning all the time. Then my lips which use to be my favorite feature began to look thinner. My skin was becoming reddish orange tinted and the acne was growing on top of my skin. I just felt like everything changed dramatically from the fresh face I use to have.
At that time, there was nothing I could do to fix my physical appearance but I had alot of people suggesting what they think I should do. It was overwhelming. I am happy to say that 11 months out of surgery, everything is improving so much. Everything that I mentioned above seemed to reverse. It's crazy but it was like the Cushing's literally melted off my face and body. Still being adrenal insufficient isn't easy. I feel tired all the time and my face does too. Even though I look the same as before, maybe even skinnier... The fatigue hasn't left my face. My under eye circles are getting darker and I still feel that tiredness in my eyes even though I can open in wider now. I hope in time when my hormones start raising up that I can see that spark again. But until then, make up, filters and a good sleep is my best friend =] Here are some makeup tips I've been posting on IG. People ask why I don't start a makeup youtube but I am too awkward on camera so I am easing my way into it with some "how to" snapshots!
Now If you want something more dramatic for a night time....
During the early stages of my sickness I already noticed that my eyes looked different. It seem to have a blank stare instead of an emotion. In most pictures my eyes would look dead even when I am smiling. Then a few years into Cushing's, my eyes seemed like they were getting smaller and my eyelids got really heavy like I couldn't open my eyes wide. My nose looked like it was growing. I felt like my whole face got heavy that I just looked like I was frowning all the time. Then my lips which use to be my favorite feature began to look thinner. My skin was becoming reddish orange tinted and the acne was growing on top of my skin. I just felt like everything changed dramatically from the fresh face I use to have.
At that time, there was nothing I could do to fix my physical appearance but I had alot of people suggesting what they think I should do. It was overwhelming. I am happy to say that 11 months out of surgery, everything is improving so much. Everything that I mentioned above seemed to reverse. It's crazy but it was like the Cushing's literally melted off my face and body. Still being adrenal insufficient isn't easy. I feel tired all the time and my face does too. Even though I look the same as before, maybe even skinnier... The fatigue hasn't left my face. My under eye circles are getting darker and I still feel that tiredness in my eyes even though I can open in wider now. I hope in time when my hormones start raising up that I can see that spark again. But until then, make up, filters and a good sleep is my best friend =] Here are some makeup tips I've been posting on IG. People ask why I don't start a makeup youtube but I am too awkward on camera so I am easing my way into it with some "how to" snapshots!
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| Barefaced with just my eyebrows and lipbalm on ^.< |
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| Blue Eyeliner helps your eye whites look whiter so you look more awake |
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| Blue Eyeliner :) |
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| Add some fuller false lashes and darker eyeshadow for a night time look |
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| Make up can make you beautiful on the outside but being gracious will make you beautiful on the inside. |
Wednesday, April 9, 2014
I Want Perfection
I know I tend to repeat this subject but it is something of importance
for me my whole life. I have battled self esteem problems and writing
about it helps me move forward.As you guys already know, I have experienced bullying and fat shaming as a child. When I became a "tween" I made a promise to myself that I would not be that fat tomboy girl anymore. I would be the girl that people admired. I wanted to be the perfect skinny, beautiful girl with nice things. I wanted to be liked by everyone and popular in school. I wanted to be so perfect, that nobody could say or find anything wrong about me. So I went on a diet with my sister and I got down to a low weight. I felt perfect for a while but deep down I felt so much self hate and doubt. I felt like the most insecure girl. When I hungout with friends I would think about how skinny they were. They had better arms or a flatter stomach than me. I compared myself in the pictures with other girls and picked out a body part that I needed to work on. Why was this girl so perfect and likable and I am not? I assumed she was prettier so that was why.
I don't know how many diets I've tried throughout the years. My first time was when my aunts called me fat and told me I shouldn't eat the cake at Golden Corral. I went to the restroom and cried and threw up the food I ate. When green tea pills were trending to lose weight, I started taking the pills. I remember trying to take metabolife and I think they had lawsuits and stopped producing those lol. I took a subway footlong and cut it into four pieces and ate a piece every few hours and nothing else. I worked out 4 hours a day at the gym then came home and did workout videos. I've tried every herbal remedy and diet teas out there to lose weight. I remember at my thinnest, I still felt huge even though people said my weight was too low. My weight would yo yo and I just couldn't stop fixating on my flaws. I would say I was obsessed with my looks. I was vain but I couldn't stop myself I was addicted to finding my flaws and trying to fix it. My hair was too wavy, frizzy, I had hairy arms, my belly was too big, I had pimples, I am too tall (yes LOL I am only 5'4) etc.. I had trouble embracing my looks and I had no idea what inner beauty was. I had no sense of self or morals. I just wanted to look perfect on the outside. I didn't feel like I was ever smart enough but I knew I looked pretty decent. What needed improvement was my mentality and self worth.
Being sick with Cushing's pushed me to the edge. I had so much self worth in my looks that I was nothing without it. I hated myself for how I looked. I couldn't look at myself in the mirror without bursting into tears. I blamed myself for getting sick because I was so vain all these years and I deserved all that was happening to me. People talked about my looks and I thought this was the worst thing I have been afraid of my whole life. When I was diagnosed with Cushing's I accepted that this was what it is. I began to stop fighting myself and finding inner acceptance. My security blanket was gone and I was forced to face my fear. Sure some days were easier than others. But I took a real hard look into myself to find something good about me. I realized one of my biggest fears happened. I was fat, hairy and pimply. And got called out for it. But I was still alive. I accepted it all. I still had people around me at my worst. I had support. Still I was ashamed at times for what I looked like. But now I see that what I was doing before was all wrong. I am so thankful for this to have happened to me for me to finally realize my self worth. And I am thank ful that I have never felt more perfect now than ever. As the layers of shame, fat, acne started to melt away, I am left with just me. I still have my days where I feel not smart enough or prettiest but I am okay with that. I would rather radiate inner beauty any day than be the prettiest girl in the room who is vapid, vain, and conceited. Because looks will fade but not my inner true self. Much love you guys! Let's all have cake and enjoy ourselves =] Here's some progress pics. My next post will be about my eating habit and lifestyle during recovery.
I don't know how many diets I've tried throughout the years. My first time was when my aunts called me fat and told me I shouldn't eat the cake at Golden Corral. I went to the restroom and cried and threw up the food I ate. When green tea pills were trending to lose weight, I started taking the pills. I remember trying to take metabolife and I think they had lawsuits and stopped producing those lol. I took a subway footlong and cut it into four pieces and ate a piece every few hours and nothing else. I worked out 4 hours a day at the gym then came home and did workout videos. I've tried every herbal remedy and diet teas out there to lose weight. I remember at my thinnest, I still felt huge even though people said my weight was too low. My weight would yo yo and I just couldn't stop fixating on my flaws. I would say I was obsessed with my looks. I was vain but I couldn't stop myself I was addicted to finding my flaws and trying to fix it. My hair was too wavy, frizzy, I had hairy arms, my belly was too big, I had pimples, I am too tall (yes LOL I am only 5'4) etc.. I had trouble embracing my looks and I had no idea what inner beauty was. I had no sense of self or morals. I just wanted to look perfect on the outside. I didn't feel like I was ever smart enough but I knew I looked pretty decent. What needed improvement was my mentality and self worth.
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| Pre Cushing's at my thinnest. I felt like a fat girl trapped in a small body. |
Being sick with Cushing's pushed me to the edge. I had so much self worth in my looks that I was nothing without it. I hated myself for how I looked. I couldn't look at myself in the mirror without bursting into tears. I blamed myself for getting sick because I was so vain all these years and I deserved all that was happening to me. People talked about my looks and I thought this was the worst thing I have been afraid of my whole life. When I was diagnosed with Cushing's I accepted that this was what it is. I began to stop fighting myself and finding inner acceptance. My security blanket was gone and I was forced to face my fear. Sure some days were easier than others. But I took a real hard look into myself to find something good about me. I realized one of my biggest fears happened. I was fat, hairy and pimply. And got called out for it. But I was still alive. I accepted it all. I still had people around me at my worst. I had support. Still I was ashamed at times for what I looked like. But now I see that what I was doing before was all wrong. I am so thankful for this to have happened to me for me to finally realize my self worth. And I am thank ful that I have never felt more perfect now than ever. As the layers of shame, fat, acne started to melt away, I am left with just me. I still have my days where I feel not smart enough or prettiest but I am okay with that. I would rather radiate inner beauty any day than be the prettiest girl in the room who is vapid, vain, and conceited. Because looks will fade but not my inner true self. Much love you guys! Let's all have cake and enjoy ourselves =] Here's some progress pics. My next post will be about my eating habit and lifestyle during recovery.
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RECOVERY 11 Months |
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