Friday, February 28, 2014

Prayers For My Friend

During the time I was sick, I heard alot of false misconceptions about my sickness. I was told I was fat, lazy, and moody. Just because I wanted to be that way. I was told maybe I should be healthier. I was told maybe my dogs gave me Cushing's. Also, I could just be stressed. I was told I that I am being tested by God. All these misconceptions made me feel I must have done something wrong to get myself this sick. Oh and this one is my favorite, "you're asian, you don't get Cushing's or tumors because those are Caucasian diseases." Could you imagine how crazy that sounds?

So I just want to set the record straight that it was none of the above that caused my illness. Cushing's is a abnormal mutation of the adrenal gland. It could have been any kind of mutation anywhere in my body but it was my adrenal gland. So that's that. The one that peeved me the most was the stereotype that asians don't get Cushing's. The reason I made this blog was to raise awareness for anyone who will stumble upon this, a cushing's patient, but I also made this to give voice that asians can get Cushing Syndrome/ disease. Or anyone else; a caucasion, latino, african, indian person...

Recently I was approached by a young lady from Vietnam named Nga Do. She emailed me asking for some advice because she thinks she has Cushing's but the doctor cannot confirm the source that is causing her Cushings. All they are telling her is that she has Pseudo-Cushings but no explanation. I am deeply affected that this girl cannot get an explanation for all of her symptoms. Also for the fact that we are both from the same country, it hurts that I cannot do more for her than to give her advice and pray for her. So I am posting this entry today for my friend Nga. With her consent I am sharing her story. I saw her more recent picture and it was almost like seeing my reflection in the mirror during the time I was sick too.  Nga, I know you will get better and I will be here for you whenever you need to talk. Thank you guys.

I ask that we can help pray for her to find an answer and have the best health she deserves.

Wednesday, February 19, 2014

If My Makeup Smears All Bets Are OFF!!

I'm kind of bored right now so what better way to be productive than to write down my thoughts. The last post I had made was basically me swooning over my lovely dude but last week on Valentines day, I was NOT swooning for him.

 On Valentines day we got into a heated discussion on the way to our dinner date and the discussion became me and him getting annoyed that neither of us understood each others perspective on a certain subject. Well in the moment, I felt like my Vday was going downhill. All bets are off when my cat eyeliner smears! >.< It was not how imagined our day to be. After that we lost our reservation and ended up driving down the street to a random restaurant. At 8:45pm, the line was very long out the door (and around the building) and the hostess said it'll be about 1 hour and 30 mins of wait. I was annoyed but instead of calling it a night we decided to just wait it out and went to the bar. We bought some wine at the bar and just talked to each other, not about the argument we just had but about random things, funny things, anything. (for ex: what was the worst thing you ever did to impress someone?) That will sure get a conversation started! Then our buzzer went off and it was our turn to be seated. My muffin looked at his phone and we both realized 2 hours had just passed and we didn't even noticed. But we were in a better place than we were before we left the house and before our argument. I want to write this down so I remember the lesson I learned was that our relationship is not perfect but if you choose to love and laugh then the rough patches become smoother. I try to remember now that I have a choice. Do I want to suffer and make others suffer because I am unhappy? Or do I want to be happy and my happiness makes the person I love happy too. haha now i'm confusing myself. Well that was my imperfect Vday story.

After Vday, this Sunday I ate some medium rare fajita meat takeout at Taco Cabana loll NEVER EAT rare meat from TC!! That was a bad idea... Well a few hours later I felt sick with a sore throat. The next day I felt terrible and that night I had symptoms of a cold. In the morning I was hot and sweaty but cold. My joints and muscles were in so much pain, my head was throbbing and my throat felt raw. Muffin immediately got up at 6 in the morning and went to Walmart and bought some medicine and a thermometer. When he got home he got some soup and took my temprature I was burning up to 102 degrees. He was worried because never had I gotten the flu and fever combo for years. and if it reached 104 I would need to go to hospital. I guess having Cushing's really suppressed my immune system and allergies until I had the surgery. Now I get sick pretty often but this was by far the worst. So Muffin was worried and decided to take off work to stay home and nurse me back to homeostasis or till I stabilized loll. So we doubled up on the Cortef steroids and stayed in our bed the whole day sleeping, checking my tempurature, taking meds and watching tv. Even though that was the worst fever I have ever experienced, it was my favorite sick day I've ever had.
^ The Soup Police!


 So I guess this is really a lesson that losing expectations on what you want and what you need. I don't know if that makes sense, im getting tired and my thought process is declining haha well have a blessed day for anyone who is ever going to read this entry! And remember that you have happy choices! <3





Friday, January 31, 2014

The Meaning of It ALL..


When I was going through my darkest days, I questioned my will to live. Nobody should suffer that way in any lifetime. I felt a heavy heart and and nothing I did felt right. I had no one that understood the conflict and pain that was going on in me. Throughout the whole process of getting slowly sicker, getting rejected from doctors, friends and family, finding an endo, going through the tests, labs and scans, having surgery, then waiting for recovery--- It felt like it was too much to handle. I felt weak. People told me that I must be strong to still be holding on but I felt like any moment I would let myself slip away and find peace with God.

After all of the suffering, I did not know what I suffered for. Until this happened....






 ^sorry I couldn't get the whole message! But I replied to your recent email today!! Stay strong <3

 ^ When I started getting emails, messages, and comments from people (I am keeping their indentity anonymous) who are in the same position I was a few years back. These people are suffering, falling apart, and are on the brink of breaking. They need an answer to it all. That is when I realize my purpose of  all the suffering was to be here for these people, write this blog and tell them, I understand what they are going through. And am the example for them to know that if they hold on, they WILL be okay. These past few months have been getting better. and everyday I am getting stronger inside and out. I never knew how weak I was until I realized how much strength I do have now. If that makes any sense! lol. The weakness, suffering and pain is somehow becoming the strength I have within myself now. I just want to thank again to the recovered women who told me I will be okay. I remember life felt so pointless. My hair was falling out, my face was full of cystic pimples and scars, my face looked like a heavy saggy mask, my body was swollen. I felt like I would never get back to the way I use to look. But the amazing thing is that, I feel more beautiful than ever now than  before. I don't know how it is possible after going through hypercortolism. Maybe it took all of this for me to find strength and self love. I want to thank you for all the people who have reached out to me. And thankyou for reading my blog. If it weren't for you, I wouldn't know the meaning of it all and finding the peace inside myself. So please stay strong and I will be there whenever you guys need an ear, a prayer, or an answer or anything. <3


Here are some links for when you want to read more about other patient's stories and you can contact the recovered patients:

http://csrf.net/living-with-cushings/patient-stories/


Wednesday, January 8, 2014

My Battle with Depression, Suicide & Stuck Up Betches

I've been fighting with depression for a very long time. In the past as a young child, I was bullied for my weight. Everyone called me fat and ugly in elementary school. My family was not too well off so I didn't have nice materialistic things so I was bullied for that too. It doesn't help to have vain, judgmental, abusive people around while growing up either. (not my parents) of course.With all of that being said I am growing into a woman of my own and do not call myself victim to these experiences however they do make me more predispose to the likelihood of being depressed.

Chubs



Life in general felt rough to me. I had no one to tell me what was right and wrong and usually I would make the "wrong" choices. I did lose weight when I got to middle school and found a bit more self esteem and made some friends. Still, I felt awkward and I was not comfortable in my own skin. When Highschool rolled around I blossomed into a young lady and shedded the awkward phase. Not to say my blonde phase wasn't awkward! lol anways, I joined rotc, sports, cheerleading, and extra curriculars to validate that I was accepted socially. I did pageants and other stuff on the side to feel more beautiful. All those things did temporarily void my emptiness however when it was over, so was my little life. Then I would go on to find other things to temporarily fix the void. Deep down I was still the scared little fat kid.

In the beginning of University I made a lot of new friends and partied a little too hard. Which is OK because we all go through that phase and nobody can judge us for wanting to have fun and enjoy life. However I lost sight of who I was. I put away the scared fat kid to become another persona which everyone seemed to enjoy. But those days I have to say that I didn't like what I was becoming. I was hanging out with bullies. The people who inflicted pain in me when I was young were now the people I called friends. I hated them but mostly I just hated myself... I drank & smoked the pain away. Finally reality hit me that I don't want to be that way anymore. I stopped seeing these certain people (not all) and decided its time for some soul searching. I never felt more depressed and alone at that point. I chalked all those sad emotions up to my losses. But something deeper was hurting.


A year later I was hurting inside. I hurt so much that I stopped going out at all. I stopped seeing family members who put me down and I stopped self medicating. I was going insane with my anxiety that was growing so strong. I was paranoid and felt like I had a demon inside of me. I began to look in the mirror to see a face I didn't recognize. My face was getting swollen, cushinoid, acne all over down to my neck. I stopped getting a period and stopped feeling like I was a woman. I felt like a monster. I had intense feelings of mood swings and did not know why. I felt more depressed, anxious, and rapid heartbeat. I was so fatigued. I saw it in my eyes. I blamed myself for becoming that way. I must have been a terrible person to deserve this. Family & others shamed me for looking that way. Nobody was supportive or there for me. I will never forget the day this irrelevant person called me fat in front of my boyfriend and laughed in my face. You had your chance to make it right with me, and you haven't. I forgive you, but I will never forget what you did to me. Because of you, I started having suicidal thoughts. It's not because they called me fat. It's the fact that someone had that much hate at me to say that to my face in front of other people then laugh about it when nobody asked for their opinion. But whatever happened was in a way a good thing. Atleast it helped me hit rock bottom.. Well, I was already at rockbottom before that. That was just kicking someone when they are down.

                  This was my pain, please do NOT attempt. If you are having thoughts of hurting yourself or others, please contact immediate help or hotline!!

Everyone has inner pain, and inner demons they fight. Most people can hide it from the things they do everyday but whatever that was happening to me was about to come out. I was falling apart. One night I started getting panic attacks. It was the worst feeling ever. The next time I had a panic attack I decided I DO NOT WANT TO LIVE ANYMORE. I took a lot of sleeping pills and walked out to the third floor balcony. I said a prayer to God, "please forgive me but I can't live my life feeling this way anylonger" and sat on the railing of the balcony ready to end the pain. Luckily Muffin saw me and held on to me. My second attempt was when I started cutting. I made a cut for each pain I felt. Then Muffin caught me and told me I needed to see someone to figure out what was wrong with me. I told him I hated myself and my life and he said, "listen to me, you are not yourself this past year, you are a good person, you're not yourself and we will figure it out." I thank him everyday for telling me I needed to find help and it wasn't me. When I finally went through the months of diagnosing Cushing's things were not easy but it made me feel so much better that I had an answer to why I felt that way.

After surgery I expected to feel better immediately but instead I felt worse. Due to extreme low levels I was getting even more depressed and anxiety. But it was different this time. It was intense and I had crazy CRAY CRAY thoughts. Anyways I decided to seek help of other patients and hear their story and most people are the same as in "be prepared for the long recovery". I will say the sadness took a turn at month 5. The feelings became less intense. I felt more at ease. The little things don't bother me anymore. I smile more than have strange negative thoughts. Then two weeks ago from today, I felt REALLY good. I can't explain it. Sure, I'm probably still more prone to moods than a normal person but that's okay. Atleast I am on my way to brighter days. I am not "there" yet most definitely. Here's my advice for depressed person or Cushies before, during, after: Get a psychologist, get meds from a psychiatrist, talk to a counselor. Seek advice from other patients including ME! I would love to answer any questions you have. IT DOES NOT HAVE TO BE THIS WAY. I am not myself yet but I am getting close to an even better version! I'm so glad I did not give into the darkness and there is better things to come. I want to thank all of the people who gave me advice that I will feel better in time. You guys were right!
I wish I could tell my old self that I am good enough as I am. Everything will be alright. Just be yourself and everything else will follow. I'm thankful to have been through the sadness because now, I have room for happiness. I've been slowly peeling back the layers or false belief and pain and revealing the wonderful thing that we all are. Perfectly imperfect Purrrfection!

Saturday, December 28, 2013

Happy New Year! Happy New You! and My Instagram!

Destroy What Destroys You.
 
Just posting a quick motivational photo for the new years. Recovery journey is starting to take a big turn and  it feels real good to me. I want to do a post about my experience of falling out of depression, so probably next blog will be about that. And no it's not because of the physical changes that is making me happier.... It's mentally too. It's amazing how things can change when I've felt so stuck in a rut for many years. Anyways I'll save all of that for next post!

Any who so I joined two social networking! One is called "Experience Project"-- if you feel depressed, like you need someone to talk to and nobody is there for you, go join this website! You can find people who are going through similar things that you are going through and seek advice.. Or just to talk to. NO HATERS ALLOWED! So try it out!! and I also joined Instagram. Sure I don't have many followers but I just wanted to have a place where I can post up some motivational stuff and progress pictures! I already have some Cushie friends that are seeking advice and seeing the progress of other fellow Cushies... If you have an account for either social networking sites, join us & add me!! See you in 2014!

INSTAGRAM: MEOMEEOOW
ExperienceProject: Yoshigirl12

Thursday, December 12, 2013

Sexy Pictures of My Test Results!

Haha jk about the sexy part. Some people like to post sexy "selfies" but I will post bloody test results! Hey, I put hearts to make it sexier lol <3 The blood test results are in and drumroll..... 

^^Lol nothing much to see here but last month I was .03 So that is something? Unless it's just residual medication I took the other day prior to drawing blood. Hope not. I was at .03 three months ago.. I get nervous before bloodtests not because of needles but I still feel iffy these days so if my adrenal gland was to normalize I would be dissapointed that "iffy" would be the new normal I have to live with.. But the test confirms the iffy feelings. Still long ways to go. I am feeling better than before so let's keep rolling with the good times & improving. Still got my patience socks on. If that is the only thing I learned from Cushing's then it would be a good lesson of patience. Yeah, for those who have experienced major illness ya'll know that getting sick is only the beginning. Now there are other concerns that are raising up. The doctors told me this would be expected to find underlying problems after since Cushing's masked alot of underlying problems with itself. For example my allergies came back. But that's the least of my worries. Sounds like a sad broken record but I'm sharing my truth and that's what's up.

The dizzy spells are still here. I feel light headed and numbness on my chest and face often. It's worse when I'm hungry or tired. My PCP told me my white blood count (WBC) is low so we are going to investigate.. Health is a tricky little equation..

 
I went to vacation last week and I could not be as active and snorkel or walk too much. But it was still a great winter escape nonetheless. Wish I could stay there forever! I'll post up some pictures next time but I'll preview a real sexy picture down here. =]

Sexy Paradise eh?




Thursday, November 21, 2013

Body Progress Pic Update


^Bloated, I couldn't suck in my stomach lol



I've been kinda in a funky mood feeling extremely weak and dizzy. Yesterday I halfway blacked out. I started seeing grey and tingles then I fell in the hallway. So I greyed out lol.. It usually happens when I stand up too quickly. I feel  numb on my face & chest like I am not getting enough air in my lungs. which makes the anxious feelings worse. And the low energy feeling lasts all day. To get my mind off it, I took some pictures to remind me I AM getting better. And I want to share it here. The other day the nurse weighed me and the scale said 112lbs. I couldn't believe her I made her weigh me again. And I haven't been that low since highschool. I think even then I was 115lbs. So great my body doesn't hate me anymore! The weird thing is that my height was 5'3 but I use to be 5'5, before surgery I measured 5'4 - how did I lose 2inches???  I'm posting up some pictures with Cushing's and 6 months after Adrenalectomy. And the last one is a few days after surgery. The scars are healing nicely. So far I have lost maybe 2 or 3 lbs every month to a total of 17lbs! And what is my secret? Getting a Cushing's tumor removal! Lol I have barely exercised, or changed my diet, I do eat smaller portions because if I stuff myself I feel sick... Every time I try to run it is too painful & nauseous. And I am constantly craving sweets and carbs these days. I guess that is what low sugar and adrenal Insuffiency will do to you-- give mad cravings but still lose weight. I just walk for like 30 mins a day... But I am very inactive compared to before. So it is just a joy to see progress!